To continue the story of Dex and Jax...
We spent their first four days in the hospital, learning all about this new adventure. I discovered that recovering from a near-complete natural birth AND a c-section is not a stroll in the park... but made much easier by the site of two little munchkins with the softest skin EVER. D.R. learned that balancing a demanding residency with overnights at the hospital and the ever-present desire to be somewhere else (with two babies in his arms) is going to make this year even more challenging than he imagined. We also learned that the first few days in the lives of two low-birthweight babies has ups and downs very different than those of the babies who are quickly brought home following their birth.
By the end of the first day of their life, it was clear that Dex and Jax were struggling. They were extremely lethargic and were both very jaundiced. The poor little guys endured way too many blood tests from the bottoms of their tiny little feet, and their mama cried through every one. As a result of the jaundice, it was nearly impossible, at times, to wake them for feedings. We tried everything.... cold washcloths, light pinching, tickling... you name it, they slept through it. This was a bit frightening for both D.R. and me. The boys seemed to get tinier every single day, as well as more weak and more frail. Within a few days, they weights had dropped to nearly five pounds each. They were SO tiny in our arms.
After the first 24 hours, we began feeding them with eyedroppers. This required sticking one of our pinky fingers in their tiny mouths, while sliding the eyedropper in the side. This way, we could make sure they were getting nourishment, even if they slept through the feeding. I think this was one of the hardest things for me to accept. I had always imagined breast feeding my babies from day one... but since they were so tiny and having such difficulty sucking, I had to accept a change of plans. I don't think I slept more than a few minutes each night. I would wake as frequently as possible to pump as often as I could. In this way, I was able to start substituting a bit of colostrum for formula, which made me feel like I was providing something for the babies. I have to admit, I had some pretty emotional moments, when our weak little babies would be brought into me every two hours to be fed by an eyedropper and pumped milk. It just didn't feel right.
As a result of the jaundice, the boys spent 30 hours under the bilirubin lights. I was given no notice for this change. One minute I was holding my babies and the next moment, a nurse was entering my room telling me she was taking the babies to the nursery to be put under the lights until their condition improved. When she saw the startled and panicked look on my face, she gave me thirty minutes to cuddle with them and say a brief good-bye. In the next few hours, I made several trips to the nursery to stare at my babies through the window. The nurses ended up feeling so badly for me that they arranged to have both bili lights moved into my hospital room. THIS helped so much. In fact, we started calling the contraptions the babies' tanning booths. With their little eye-shades on they looked like miniature sun-bathers. Though they had to spend the majority of their time in the little boxes, I was allowed to take them out for feedings. It was at this time that we discovered that both have a very rare condition called Harlequin Color Change Syndrome. Though startling, at first, for both me and the nurses, we learned that this is a harmless syndrome that occurs in low-birthweight babies that causes them to change color down the middle of their bodies when exposed to sudden changes in temperature. Left side of bright red, right side was almost white. I have one photo I'll post of Dex... though it had almost faded by the time we took the shot. Our two little super-heroes... with their color-changing capabilities! We witnessed this event two times.
Whew!! I should stop for now. More to follow.